The morning of June 20 I noticed Emery felt warm. I took her temperature. 100.3. Not good. We headed straight to the doctor. MAN I LOVE MY INTUITION. There it was 100.4 rectally. Then came the words we have to send you over to the ER. I was alone with Emery. I started to cry. No! Why me? Why us? Have we not been through enough! Has my week hospital stay, my sons week NICU stay and my daughter's death not been enough?!
Right away we went to the hospital. THANK GOD my sister in law just HAPPENED to be in town helping us, and THANK GOD my brother had decided to take Carter and my sister in law to the zoo that day. IRONIC how things play out!
At the ER Emery, had a spinal tap, and numerous pokes and prods, chest xrays. Really anything you name it. It is pretty much protocol for any infant under 3 months of age. We had to step out of the room for the spinal tap, and I try not to think about if she was in pain, because I know it had to be done.
I was a MESS to say the least. Cried my eyes out. Its very hard to know your child at such a young age is ill and not know why. It was a very scary time for me and bought back a lot of memories.
They needed to run 48 hours worth of blood cultures to see if anything grew since they were not finding the root of her fever, and until then we were admitted to the Children's Ward and started right away on two different antibiotics for her fever. I stayed with her the first night and my husband stayed with her the second.
After the first day we were told her urine tested positive for a UTI infection. The next step we would take is to have a ultrasound done of her kidneys. The ultrasound showed that her left kidney has MILD enlargement. With all her other symptoms, our peditrician is unfortunately pretty confident that she had Kidney Reflux Disease.
Kidney Reflux is where your pee can go back into kidney instead of out, causing of course bacterial infections. Kidney reflux disease has five stages. They are all treatable and worst case scenario surgery is required. They can also grow out of it. This would mean Emery will get frequent high fevers and infections and need to be on constant antibiotic.
Our next step is to have a VCUG test done. It is done as a outpatient with a catheter after she has had no fever for 24 hours and negative culture, meaning the infection is gone. This will take place in a few days, as again she has to be fever free and no infection at the time of the test. The test involves a catheter (hollow tube) is placed in the urethra (tube that drains urine from the bladder to the outside of the body) and the bladder is filled with a liquid dye. X-ray images will be taken as the bladder fills and empties. The images will show if there is any reverse flow of urine into the ureters and kidneys,' which can indicate that your child has vesicoureteral reflux. (And in Emery's case since we KNOW she has reflux...the severity of hers) I believe she can be sedated for this. I don't even want to think about the discomfort for her.
We will see a urologist as soon as we can of course.
This
IS a condition that she can grow out of. She can also need surgery. It
all depends on the results of the VCUG. It does not make this any
easier. No one likes to have something medically wrong with their child
or know they may be in pain. All we an do is hope this is mild and hope
to be fever free for the next month so we steer clear of hospital.
This is a lot of information for us to take in. With me having just delivered and having blood pressure issues and with a two year old in speech therapy who will be starting school in September and hopefully potty training in August! Its a lot! I hope we can get through these next few months with no ER visits for Emery!





















