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Monday, January 4, 2010

The beginning of the end


No one ever talks about what could happen, or tells you about diseases to look out for during pregnancy. I bet 90% of women don't know what Severe Pre-eclampsia or HELLP disease is. These diseases took my daughter's  life and almost my own. This is Cara's story...











May 23th 2009 my husband and I learned that we were pregnant. Little did we know that this would have such a tragic outcome. November 17th 2009 we lost our little girl Cara at 30 weeks due to Severe Preeclampsia. She was beautiful, she was perfect, she was silent... Here is her story...

My pregnancy was uneventful, typical first ultrasound and prenatal doctor appointments.
November 1 2009 at 28 weeks I went to my 3D ultrasound. We got to see our baby girl move and smile and even suck her thumb. Everything looked great.





November 2 2009 at 28 weeks (the day prior) I woke up with swollen ankles,




my eyelids were even swollen. This could not be normal... I knew I had an appointment the next day but did not have a good feeling at all. I called my doctor and told them I needed to be seen right away. I was told a nurse practitioner was the only doctor to see me, at the point I did not care who saw me I wanted to be seen. I went in and they did a urine test (I later come to find out that I had 1+ protein in my urine...(protein in urine during pregnancy can be a huge indicator of pre-eclampsia.) We talked about my concern with Preeclampsia.  My blood pressure was 128/90 which was my highest reading yet in pregnancy. Typically my blood pressures were 100/70 or 60's...without any further testing...I was sent home.

November 15th 2009 at 30 weeks It all began... I was laying in bed with ice packs on my head with a headache I would never be able to explain to anyone. Then came the vomiting. I called the doctor on call, explained my symptoms. I was told I probably had the flu and to wait 4 hours and if I still was feeling bad to come in. Within an hour I found myself on my way to the hospital. On the way to the hospital I knew something was very very wrong. I remember thinking that I was dying, I remember thinking how quickly I just wished to get there. As my husband pulled into the hospital... I had started seeing flashing spots/sparks and my vision started to go in my left eye.

November 16, 2009 I was 30 weeks and 2 days along. While checking myself in the hospital, I noticed I could not think straight or even pull my id card from my wallet, I felt like I was going to pass out. Upon entering my room, I began to vomit again. The nurse came in wearing a mask. Of course everyone was concerned about the swine flu. The nurse tried for about 10 minutes to find a heartbeat.  Nothing...nothing at all. We knew something was wrong...all we heard was silence.  In the back of my head I never in a million years would have thought that my baby was dead. I just thought...Just get a nurse in here that obviously knows what she is doing...I mean my baby just had a heartbeat not even two weeks ago! I called my mom and told her they could not find a heartbeat...she was on her way. The nurse said a ultrasound tech would be coming in to "get a better look." When the tech came in we knew something was wrong. Not by the lack of a heartbeat sound...but by the way the nurse and ultrasound tech were acting. Nervous, on edge, jumpy. You just knew by looking at them, that something was horribly wrong. On the screen we saw her in a head down position...no movement. I asked the tech if he heard a heartbeat, he said "The doctors will be able to have a better look." Again I knew something was wrong but never did I think she was dead...I guess that as "a soon to be mother" a dead baby inside of you is the last thing that crosses your mind.  My mom arrived, and my dad was on his way. When the doctor came in I knew immediately that we had lost her, because not only did a doctor come... two nurses came in as well. Very quiet...very slow. The doctor said "Laura your baby has passed." My first thought was that's impossible, there was no way, are you fucking kidding me? I looked over at my husband who was crying "no...no..." I began to cry...

From there my mind seemed to stop. It all gets real blurry from here...(every few months as I remember the events of that day I tend to fill in my story)

I remember suddenly a switch turned on... I was calm. I asked what is going to happen next, and was told I needed to deliver my baby. I could not believe it. I had to deliver a baby and I could not even keep her or see her cry or smile? I thought they would just suction the baby out...never I would I imagine that I would give birth to a dead baby. Those are things no one in life prepares you for or warns you about...things in life you don't even think about things that blind side you on a tuesday afternoon. My mind was filled with 1,000 different emotions. The strangest feeling for me was...I was not scared...I did not care...I had no idea how sick I was and how sick I was going to become. I had no idea what time it was...nothing... I just wanted to go home and pretend this never happened, to pretend I was never pregnant to begin with. I wanted to erase all horrible outcomes from my head. I remember thinking "Ok ill give birth...lets get this over with...I want to go home...I want to go back to work...Ill just tell people to never talk about it...ill pretend it never happened...I was never pregnant."


Blurry...its all so blurry. I truly believe now it was my body's way (as well as Gods way) of taking care of me. Blocking any crazy emotions I had for the time being. I do not remember this part at all...I was told I was wheeled into a bigger room and right away being started on a IV hooked to fluids, blood pressure medications, antibiotics (because I was running a fever of 101), and magnesium sulfate (Anti seizure medication) My mom told me she never in her life saw nurses and doctors move so fast. I never once asked what time it was. I never asked what was going to happen. Never asked how sick I was or what was wrong with me. Never asked if it was going to hurt. Never asked how many times I would push, or how long I would be in labor...nothing. I was put on IV drug called Magnesium sulfate ...It is a brutal drug. The 4 days I was in the hospital. I laid there...no TV...no lights...no sound...nothing. If my husband was watching TV with the sound up I would have a fit. The room was always at around 60 degrees IN NOVEMBER...THATS how hot I was...people in my room wore jackets. I remember asking them if they were cold as I lay there practically naked with ice rags all over my body. They would respond "nooo." My head was going to explode...that I was positive. My BP was 160/110 which is dangerously high. After running blood work, the doctors immediately knew I had Severe Preeclampsia. I remember the doctors coming into the room and hearing the words "Severe Preeclampsia" I already knew what that was. That is WHY I went to the doctor for my emergency appointment. That was WHY I asked about Preeclampsia. Well now everyone seemed to be very concerned about how sick I was and I didn't even care. The magnesium  made me vomit frequently and vision loss on my left eye became worse. I dont remember falling asleep that night, but I do remember nurses giving me pills to make me sleep.




I remember having labor pains, and for some odd reason the nurses kept pushing me to get an epidural saying "Your already going through enough, you should not have to suffer any pain from this"  I kept thinking who cares...I dont care. I kept having contractions that were stronger and finally said ok to an epidural which made me itch...itch to the point where I had sores on my face and scratches all over my neck and chest. The sores on my face lasted for 2 weeks. It was a horrible feeling. I wanted to crawl out of my skin. I guess I was sleeping on and off majority of the time. Next thing I remember was waking up and saying, "Im ready to push" Its weird its like your body just knows.  I finally was dilated to 10. I remember asking "what if im too tired to push" I had to have people hold me up, I could not hold my own body up. (later I come to find out I was in labor for more than 24 hours!)  Seems like minutes...My mom and Kyle stood with me as I delivered our angel into this world...with wings.

I guess I have never talked about how we got to the name Cara, as we had Mya picked out along with some others that honestly I can't even remember now. I never in a million years even gave thought to naming her. At the time I didnt even think I was supposed to name a dead baby. Something that from the beginning I was so ANAL about! Now I just did not care. My mom came over to be at one point after she was born and asked what I wanted to name her... I said I did not care. Well my Family is Italian. My Pappy is from Italy. My Aunt P said what about Cara it means beloved in Italian. I said fine, and that was that. Now its so perfect for her!

November 17th- Cara Angel Meindel...born at 2:30... 2lbs 11 oz and 16 inches long...stillborn.



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As you can see she was super long, just like her six foot three inch daddy! She has the cutest nose on the planet. The nurses asked me if I wanted to hold her, I said no. I can't explain why I did not want to hold her, although I wish I had. They cleaned her off, gave her a bath and dressed her. I dont remember any of that. At one point right after she was born (in the picture below) I asked my mom why she was that color. It was like a scene from a movie, a dead baby laying right in front of me...and she was mine. My family came in and everyone was able to love and hold her when I could not. I did not even cry. I had no emotions. I dont remember much at all, just wanting to sleep and wanting everyone to leave me alone. When she was born she looked like she would breathe or move...but she didn't. She just lay there. I remember being mad that everyone was holding her and rocking her and dressing her. I did not want anyone to hold her.I was so mad that nurses were taking pictures. I did not want any pictures. I could not understand why everyone wanted to hold her and kiss her... she was dead. Now I only knew everyone was doing it out of love. I am so mad at myself for not loving her more during that moment. I wish I could take it back. Every day now I wish I could hold her. It is to date a big regret of mine. Now I am so glad that I got to spend time with her because now whatever time I did spend and the pictures I have I cherish.



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Apparently I passed out after my delivery. After my delivery I must have gained another 10 pounds. I started pre pregnancy at 127 and got to 162 when I was admitted...then gained more after delivery.  So you can imagine how much water weight I had. I had nurses tell me that when I originally admitted myself and gave my ID to them...they could not find who it belonged to...that's how different I looked. I remember my mom telling me I need to start thinking about her baptism and funeral. I could not. My Uncle J (Who spent every day there at the hospital with me) helped my Parents plan everything. I had no part in her funeral, I was too sick. I held my beautiful daughter for the first time (that I remember) during her baptism, it was done right in the room. Lots of hail mary's and our father's. Ill never look at church stuff the same.




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From that point on I don't remember much again. I know I was hooked up to a blood pressure machine to take my blood pressure every 15 mins, was still on the magnesium sulfate, and was getting blood drawn twice a day. Cara stayed in the room with us that night in her basket, I dont even remember falling asleep. I know I had nightmares. The next morning it all sunk in. I held her and cried, she had my nose and my chin, and Kyles eyes and toes and long body and lips. Just how amazingly beautiful she was. I could not even comprehend why this was happening to me. I know that Wednesday the 18th that the funeral home did come and take her, I thought it was time. I kept telling my father that she had been with us for days. He was not ready to see her go. In reality it had not even been 24 hours. (I now wish I would have spent more time with her) I was also still in the hospital. That morning the doctor came in and told me I had HELLP syndrome...HELLP is basically when your liver and kidneys shut down. Scary stuff.  It was hard to comprehend why this happened to me, and how it was not caught.

November 19th 2009 I was finally released from the hospital. My blood pressure was still high. I went home on blood pressure medication. I can tell you that when I went home that night I wanted to go back to the hospital, I thought I was just going to keel over, because of how sick I was. I must have called the doctor on call that night a million times. I was scared to be home and not to have nurses and doctors looking over my every movement. I could not tell you what happened the next day because I simply just do not remember. I knew I did a lot of staring into space, and just counting down the hours until I could just go to sleep again...because sleeping was the only time I was not emotionally in the worst pain.



November 21 2009 We lay our beautiful Cara to rest. It was the first family funeral I ever had to go to. We kept it family only. Open casket so everyone could see how beautiful she was. It was hard because I wanted to hold her again and could not. I had my brother her god father carry her casket, that memory is etched in my mind like a movie scene. Watching his tears run down his face as he carried her white casket. Another haunting memory I have is having to watch my grandfather kneel and cry and watching my Dad almost have to be carried away from her grave site. We all said goodbye to a beautiful very loved little girl.

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This is her teddy bear she was buried with. He is going to keep her warm, until the day that she is back safely in my arms.


November 22 2009 I was not feeling right all day, I had my husband go and purchase me a blood pressure cuff and took my blood pressure. 168/135, I knew I could have a stoke with numbers like that. I was rushed to the emergency room where after 3 hours they could not get my blood pressure down and my heart rate was a steady 130 when I was laying down, that was so scary for me, I kept thinking that I was not going to make it through this. I was the most scared I had ever been in my life. They actually had to admit me again and the worst part...they had to admit me back to labor and delivery because I still had preeclampsia in my system...Which was rare. (Post Pardum Preelclampsia can occur up to 6 weeks past delivery) Of course it was...everything that was happening to me was "rare"...Next time someone says to me "Oh thats rare" Im gonna say oh really? Rare things seem to happen to me... I remember getting in the room and there were huge seizure pads on the bed, and 2 nurses and a doctor, standing there almost anticipating something to happen to me. I was so scared of having a heart attack or stroke or seizure...Again I was being hooked up to blood pressure machines and they had to put me back on magnesium sulfate to prevent seizures and again I got pretty sick. I remember my husband having to feed me jello while I was laying down because I couldn't even sit up. I remember asking for ice rags to be placed on my forehead about every 5 minutes. I laid like that all day Monday the 23. That night they took me off the magnesium sulfate and I started to come around. My blood pressure went way down and I was able to go home on the 24th on 2 different blood pressure medications and 2 different anxiety medications. This time feeling much better.

(My blood pressure finally normalized in Feb)


December 14, 2009 This was the first day I made it to Caras grave site. I bought her a dozen light pink roses and a Christmas Card. I fell to the ground and cried a million tears for her. I went alone because I like to cry alone. Its hard for me to let my emotions out. (Which is why I choose to write this blog)



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November 16-29 were the hardest days for me. Because of the obvious and because I was so scared I was not going to make it...having people ask if you have a living will...just nightmarish! My anxiety about what happened I hope will eventually subside. Losing your daughters life and then almost losing your own is the scariest thing to ever imagine. I have nightmares now and when I look at my husbands face I see our angel Cara. I know that hopefully someday we will be able to have a healthy baby. Hopefully by me writing this everyone can better understand the disease preeclampsia, how it can effect pregnant women during pregnancy as well as after for up to 12 weeks. Always listen to your instincts, and please share the knowledge of this disease, it can save lives!




CARA IS EVERYWHERE! 
Below is Cara name made by many different people from all around the world!
To make a name for Cara please email L412Angel@aol.com 






25 comments:

Malory said...

I sobbed through your story. I am so sorry for the loss of your baby girl Cara.

We were married on the same day October 18th, 2008. You found out you were expecting Cara days after we buried our daughter Janessa.

I too lost our daughter due to high blood pressure. I am pretty sure I also had pre-e but never really got confirmation, nice huh? My blood pressure has still not gone back to normal.

Our story has many similarities..I remember the feeling that I could not possibly make it home to our son. I remember being asked if I had a will & if I was an organ donor.

I know the yearning to get pregnant again but also the feeling of being scared out of your mind about the risks to your health.

I think if you read through my blog you may find some of your very own emotions. I commend you on spreading awareness on eclampsia & HELLP syndrome. I have been working on an awareness post because even if I save just one baby &/or Mom thats huge.

I am glad you found your way to blogger & my blog.

Rikki said...

I am so sorry for the loss of your daughter. She is so beautiful. I lost my boys on the 10th of january last year. I also nearly died during labour and was also admitted back to hospital days after giving birth so i know how scary it all is.
((Hugs))

Katy Larsen said...

Laura,

I just found your blog today and wanted to tell you have very sorry I am for the loss of your beautiful daughter, Cara. (I love ladybugs for my daughter, too.)

Lots of love and prayers,
Katy xxx
hannahshonor.blogspot.com

Lynda said...

Your story touched my soul. I'm so sorry your Cara isnt in your arms right now. I too had pre-elampsia with all of my children and believe deep down it is one of the reasons I lost my son. No parent should ever have to bury their child, its just not right. My heart goes out to you.

Supposed to be... "Mama G"... said...

Wow, I have shed so many tears reading your story and looking at your pictures. We lost our little girl on Feb 3rd 2010 and I know that feeling when you realize your baby is gone and they tell you that you have to deliver your child. Baby and infant loss is a personal hell that I wouldn't wish on anyone! *big hugs* to you and your hubby.

Jane said...

Cara is beautiful- and your live for her shines through in your writing.
I'm so sorry she isn't with you.

I find blogging theraputic too!

Unknown said...

Crying for you and for Cara. You know I think of you too all the time. xoxo

Unknown said...

Your words were so moving, they brought tears to my eyes. We lost our Lilly Elizabeth 2/28/2010 to anencephaly. I am so sorry for your ordeal. Your little Cara is so beautiful!! Thank you for sharing her story.

love and prayers
elena

Abigail said...

I am very sorry for your loss of Cara. I wish that she were here with you & Kyle to love & hold. My heart aches for you and all that you have had to endure, and are still having to work through. I am so proud of all that you are doing to spread awareness. Your blog is very informative! I wish you the best & pray that very soon you will be able to hold another precious beautiful healthy baby!!

JLEU said...

I am so sorry for your loss Laura. Your story sounds a lot like mine- but somehow I ended up one of the lucky ones with a healthy daughter. Now I am pregnant again and scared to death- but I can see that even though she was only in your arms for a short time- she is in your heart forever. And I can only hope for at least as much with this pregnancy. I know first hand it is not an easy choice to try to conceive again because you now bring so much baggage with you. I wish you all the best as you TTC again. Here's to uneventful healthy pregnancies

Elaine said...

I am so sorry you lost your daughter. She is beautiful. Thank you for sharing your story with us.

Micro Preemie Mom said...

Thank you for your comment on my blog. I just read your story. You are a strong woman! Cara is truly beautiful. I am so sorry you have experienced this. My close girlfriend has a story nearly identical to you, at 38 weeks back in 2007. I pray for her and her angel baby all the time. I will do so for you too! I wish I could stop Pre-e and reverse all of the horrible things it does.

Big Love, Big Acceptance - or so I say said...

I just found your blog. Thanks for sharing your story. I'm sad that we have to meet under these circumstances, and it feels good to connect.

our daughter died last Sept - we just marked her 9 month birth/death anniversary dates. I can't believe we too are approaching a year.

the part of your story where you talked about the labor and delivery, and wondering why everyone else wanted to hold your baby after she was born really resonated with me. My daughter was born with trisomy 18 and did not look "perfect". I knew she would probably die soon after she was born because most T18 babies don't live long. After I gave birth, and was laying in the hospital bed with my daughter a few feet from me in her NICU room, my mom said she was going to go look in on Acacia one more time before she went home for the night. I remember wondering why she wanted to see my daughter again? I remember my sister-in-law wanting to hold her, and I also wondered why. I was in so much shock and so numb after giving birth and learnig my daughter had T18, it was impossible for me to be present for her and with her right away, and I didn't understand how others could be there for her. In hindsight, I can recognize that I was in shock. It does seem to be a protective factor in the moment when life is just too much.

Lots of love to you!

Malory said...

I just re-read this & sobbed again. I suffered from PTSD & sometimes when I think about what could have happend to me I fall in a panic & the anxiety haunts me for days.

The itching you experieced could also be from your liver shutting down.

I did recieve your message on Facebook but the protein has me completely in a panic & I am trying my best to deal until I get the test results from the 24 hour urine test. I know its not pre-e now but there is no good outcome from protien in the urine. *sigh*

Rita Panuccio said...

I am soooo sorry for your loss . Cara is gorgeous as are you. Thanks so much for sharing your story

Lindsey said...

Cara is beautiful. I am so very sorry for your loss. I, too, cried through your story. I have lost two babies, Jacob and Ella. It was much earlier in the pregnancy (Jake at 8 wks and Ella was 13 weeks when she died, I should have been 21 weeks pregnant though). My heart goes out to you and your husband.

SarahV said...

Laura,

What you have written about Cara is absolutely beautiful, and the honesty and reality with which you tell your story is remarkable. I would like to thank you for creating this website and allowing others to read this story. This is such an important topic that people really shy away from, but it is healing for us to talk about it. Thank you for making this beautiful tribute to your daughter, and for letting us all into your journey. You are going to be one hell of a mother to Carter :-)

Sarah V.

Hannah White (Harrys Mummy) said...

Your story has touched me, i gave birth to my beautiful sleeping Harry on 01.01.2011, only 3lb 13oz he was perfect.
I too was diagnosed with preclamsyia, i had protein+++ in my urine on the day i discovered his heart had stopped, and swollen ankles, its still early days for me and im in the process of my babys funeral arranging its breaking my heart. I wish you all the best with your 'rainbow' baby.
xxx

Anonymous said...

I never know exactly what to write, but I'm terribly sorry that you had to lose your beautiful little girl. We lost ours November 19th, 2010. I guess in some way around that time in November will always be hard on both of us. I'll think of Cara next year at the same time I'm missing my Kristen.

Anonymous said...

I am so sorry for the loss of your daughter. I found my way here from another blog.

My son died from severe pre-e as well this past October.

I too told my OB repeatedly that I thought I had pre-e, she ignored me.

I was 37+4, I had 3 seizures with a full placental abruption and ended up in ICU for 5 days. I almost died right along with my son.

HOW does this happen in this age of medical knowledge and technology??

Just so you know, I too did not want to hold my son, and I also felt very detached.

Thanks for sharing, you are the first person I have read about that had their baby die after severe pre-e.

I hope you don't mind, but I will be adding you to my blog roll...

hamommy said...

Your story reminds me so much of mine. My husband and I lost our beautiful daughter, Haley at 34 weeks, 3/15/06, five years later, and the tears still fall.
Im so sorry for your loss, Cara is a beautiful name, and a beautiful Angel!
My daughters web spot, http://haley-mccormick.gonetoosoon.org/
Peace, love and big Angel hugs to you and yours!

4LJY said...

I have finally come to read your story about Cara. And tears streamed down my face and my heart broke for you. I am so very sorry. Unfortunately regret and greif go hand in hand. Our bodies go into defense mode to protect us. I too went in and out of my reality. I know that Cara know's how much you love her.

Laura said...

Hi Laura...I was reading Faces of Loss. (I have 2 friends that have their stories on there) I came across your story. It stuck out due to you being a Laura that you suffered with Preeclampsia. I too was diagnosed with it at about 31 weeks and my daughter was born at 32wks and 5days. She was 2 lbs and 15 oz and 15 inches. She was in the NICU for 4 weeks. She will be 3 next month. I realize reading these stories how lucky I was. I was so frustrated reading your story. I wanted to scream at your doctor for you. I am so sorry that happened to you and for the loss of your Cara. I also will say how brave I think you are to go through a pregnancy again. We decided to have only one in fear of the next pregnancy. Carter is beautiful. God bless you and your family!

Fiona said...

I developed eclampsia after my daughter was born and I had 3 seizures. I'm very blessed to be alive today and watch my children grow up. Here is my story if you would like to read it ~
http://rememberwhenwewereyoung.wordpress.com/2011/07/27/two-and-a-half-years-ago/

I am so sorry your story didn't have a happy ending. Doctors should be more diligent when it comes to the signs of pre eclampsia and eclampsia.

Vineeta said...

Laura, Thank you for sharing your story. God bless you and your family. I'm sure Cara is watching over you and thinking of what a stonrg mommy she has. Lots of love to you, Vineeta